Back To Square One

After the unexpected emergency room stay for a stomach virus, there were lots of follow-ups with my primary care doctor and my neurologist in Denver.

We decided to biopsy one of my most chronically painful muscles – my quad. It’s one test that we hadn’t done but because the pain in my upper legs and upper arms continues to worsen every day, I felt strongly it was time.

Many also asked if the Mayo BeST Clinic helped. It helped with the fluidity of my movements for sure… not a bit with the pain.

For me, it’s a matter of how to fight an enemy when I don’t know who (or what) the enemy is.

When you have an invisible illness or hidden disability, you are judged. It’s often is thought that it’s just in your head. Even I have questioned over the years if I was living my actual reality. For me, a concrete diagnosis would bring validation to the struggle, something you can try to fight, something you can explain to those who ask.

Published by Naomi Binkley

A mama, wife, Coloradan, storyteller, entrepreneur with a once-hidden illness - now a progressive and painful disability - ready to share my story after a career of telling those of others as a video production company owner.

One thought on “Back To Square One

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